It feels a little like the Wizard of Oz when we're in the NICU: We have a long journey to get Wilson and Clara home and along the way we have to make sure they have courage, brains, and good hearts. I think they have already proven they have more courage than we do, so we can check that box. Today we received a more detailed report on the condition of their hearts. Both Wilson and Clara have PFO's, an opening between the upper chambers of their hearts, which is not uncommon for preemies. The doctors are optimistic their PFO's will close but will continue to monitor. Clara doesn't have a PDA, a more serious opening/hole in the heart, and doesn't have to have another scan for a few weeks. Wilson might have a slight PDA, but it is so small they can't be sure. The doctors will monitor it and hope it can be cured medicinally.
As for their brains, the big thing to look for right now is whether there is internal bleeding in their heads. We were supposed to have neurological scans today but they were pushed back until tomorrow. Brain bleeding is graded in preemies on a scale of one through four with one being the best and four being the worst (and possibly fatal). Hopefully we'll know something more tomorrow night and continue to pray for the best in the meantime.
Wilson also had to receive blood today to boost his hemoglobin count. This is not uncommon and both kids will probably have to have this infusion several times before they come home. However, in a moment only parents could be proud of, Wilson did take his first poop today. Mr. Hanky has nothing on our little man. Of course, what's good about this is he did not reject his first dose of breast milk and will be able to continue receiving small doses. We hope in 3-4 weeks he will be receiving all of his nutrition in this fashion. Below is picture of Wilson from today. Both he and Clara were taken out from under the UV lights and Wilson wanted to show off his tan!
The BIG news from today though is that Chris was able to hold Clara for almost an hour. This is Clara's first trip out of the isolette and she didn't disappoint. Described as "feisty" by all of her nurses, Clara got in Mom's arms and immediately calmed down. It won't be long before the first father/daughter dance and we hope she behaves as well.
Wilson and Clara continue fighting and have maintained a solid forward momentum. Thanks again to all of you for your prayers, food, love, encouragement and support. Without you this difficult journey would not be possible.
We are thinking of you guys hang in there!
ReplyDeleteYou guys are so great to keep everyone updated via blog. We are praying for you, so this helps us to pray for all of Clara and Wilson's specific needs (as well as yours!). We send our love!
ReplyDeleteRhett & Lauren
Thanks for the updates Morgan and Chris! I am praying for your beautiful little dolls, and I'll certainly send extra requests up for good brain scans. Hang in there, those 2 babes are so blessed to have you as parents. Coop and Mike (Wade)
ReplyDeletePrayers for Wilson and Clara today! xo Haley, Dan and Cooper
ReplyDeleteI just cried at my desk when I read the part about Clara calming down in her momma's arms. You guys are amazing & I appreciate the updates you're giving us on both Clara & Wilson. They are lucky to have such strong & loving parents.
ReplyDeleteSo glad you guys are writing this blog so we can keep up with your family!! All 4 of you are in our thoughts and prayers daily!! XOXO, Gary & Kelly
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